What is Joie de Vivre?


An uplifting expression in French meaning: Joy of Life.
"Joie de Vivre" is not only an expression but a meaningful way of reminding one how to live... one day at a time.
Through my words and my vision, I lay bare the thoughts of my heart...

MY GOAL WITH THE 'JOIE DE VIVRE' BLOG
I consider myself a simple person with a simple life philosophy, "Do to others as you would have others do to you. Live life showing respect, truth, honesty, integrity and passion." Amongst my life goals are to live a life as a positive influence and to leave behind footprints of hope, encouragement and inspiration.

Keeping each other informed to provide support, love and understanding for those going through life's hardships...

Thursday, December 21, 2017

Stroke...



Stroke [strokh] n.

1. the act or an instance of striking, as with the fist, a weapon, or a hammer; a strong blow
2. something likened to a blow in its effect causing pain, injury or death
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Personally, I never really really thought about the meaning of 'stroke'... less the meaning of what a 'brain stroke' is and how it can change your life. In many ways, I can now understand why this type of brain injury can be called a stroke.

To be completely honest, I never really thought about how this has such an adverse effect on people until it happened to someone close to me... my dad. Only now can I understand the destructive force of a stroke. Even to this day, my family and I still feel the wake of such a traumatic and drawn out event.

My dad fell ill and was admitted to the hospital on November 16 and passed away a few months later on July 7, 2017.

I can never fully express what happened during the nine months my dad was hospitalized. One day he left and never came back. It was as if someone tore my father away from me and never giving me the opportunity to say good-bye. After a while, your life becomes one long horror story with no end in sight.

THE STROKE

Nothing prepares you for a sudden change in your health.
It was a typical Monday. My mom, dad, husband and I had just gotten back from a camping weekend the day before. It was a typical Monday but on this Monday... it was a special one; my brother was going to ask his long time girlfriend to marry him. Little did we know that the events set in motion on that day would send our family down a rabbit's hole of nightmares.

The plan to the ultimate proposal was quite simple... get ready and be there on time.

Time... we never have enough time.
Cold and unforgiving if you don't get your affairs straightened out in a 'timely' manner.
Play on words and ironic...

Needless to say... my dad did not make it to the proposal.
At that point, we had no idea what had happened or what was happening but a strange thing... he would have never missed his own son's proposal.

Guilt... now that's a serious word.
How can you be incandescently happy without knowing about the excruciating pain a loved one is going through at the same exact moment? Once you know... you can never forget. You question your existence, your surroundings, your feelings, the people around you... is this some plot to make me suffer and punish me for being selfish?

Truth is... it isn't. He just happened to be 1 of the 795,000 people that would suffer a stroke that year.
A plot against your family... no.

Long story short... this man... suffered through 3 days of pain before he decided that he needed to go to the hospital. Once we had gotten to the hospital, he began displaying the signs of a person that had suffered or was about to suffer a stroke. All the signs were there but a stroke... that was not on our minds. A heart attack maybe but not a stroke... Scans later reveled that my dad had two aneurysms and one of which had already burst and was draining blood inside the cavity that surrounded the brain and with every passing second created more and more pressure. 

Three days... would it have made a difference if had gotten him help sooner? Maybe but then again maybe not and that's something that you will never know.

Mental torture...

My father later that day suffered a stroke. A Hemorrhagic Stroke to be exact.
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 Hemorrhagic Stroke                                                                                    

Hemorrhagic stroke accounts for about 13 percent of stroke cases. It results from a weakened vessel that ruptures and bleeds into the surrounding brain. The blood accumulates and compresses the surrounding brain tissue. The two types of hemorrhagic strokes are intracerebral (within the brain) hemorrhage or subarachnoid hemorrhage. Hemorrhagic stroke occurs when a weakened blood vessel ruptures. An aneurysm is a ballooning of a weakened region of a blood vessel. If left untreated, the aneurysm  weakens and ruptures and bleeds into the brain.

Use the following links to learn more.
Information is provided by the Stroke and Heart Association of America.
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Post Trauma

My father had to be submitted to several brain and related surgeries.
This, among other things, led to permanent brain damaged and eventually ended up in a vegetative-like state in which he could not speak, eat, drink, move around freely or express feelings of sadness or anger. My father had always expressed his fear of ending up in the condition he was now in. Some of the surgeries he was submitted to were long and drawn out processes and not to mention dangerous. His life was literally a ticking time bomb every time he went under the knife.

 He had to have a tracheostomy, in which a tube is placed through the hole and directly into your windpipe to help you breathe. This limited the facilities in which my dad could be accepted to and was a constant battle to get him the best care in a location that was close to home. Of course, the facilities that would accept my father in his condition were more than an hour away and created a huge challenge since my brother and I work full time Monday-Friday and sometimes on Saturdays. There were months in which I was limited to seeing my father 2 to 4 times per month. I often felt guilty that I couldn't be there more for him but at the same time, I would dread the drive to go see him.

You see... I was used to seeing my dad differently. After being so long in the hospital, he had started contracting different viruses and bacterial infection in which could be passed along or harm those around him. I was limited to seeing my father in a surgical gown, a mask and gloves. I couldn't even kiss or touch my father without risking getting infected with what he had. There were moments in which I wished that my auto-immune disorders were non-existed just so I could touch my father once more and comb my fingers through his hair.

I was used to seeing a strong and funny man.
Seeing my father literally deteriorate from the inside-out scarred every aspect on my living soul. My father at the end lost more that 120 lbs since the day he arrived at the hospital. There were times in which I didn't ever recognize my own father. I was pretty close to my father... he wasn't just the man that was half of my genetic composition... as I got older, our likes and dislikes became very similar. His hobbies were my hobbies. His favorite music became my favorite music. His favorite sports team became my sports team. He was more than a father to me... he was also my friend.

The bible describes a similar friendship with Kind David and Jonathan. Jonathan was easily more that 40 years older than David, but the Bible mentions that their 'souls' were tied to each other. When Jonathan died, Kind David wept and felt the loss from deep within his being and never got over losing his friend. I guess you can say that life was tied to my father's life. The day that he was admitted to the hospital... my connection and bond was ripped at the seams beyond repair. The day he left home was the day my father died...

 I would wake up in Nightmare cold sweats and sometimes to anxiety/ panic attacks in which I felt that my heart would burst out of my chest. My emotional pain matched to physical pain...
There would be moments in which I would scream and beat the walls of my house to help alleviate the visions of horror that I was exposed to. How can you live but not live? I would think about whether or not he could feel or see us and if he could... what was he thinking? What couldn't he say to us? There were many times in which I felt as if we had betrayed him by allowing him to continue in his state for so long. Even so... we always kept a straight face in front of my father and never let him see the sadness in which our hearts dwelled.

You obviously don't want to loose your loved one but the pain of watching someone you love suffer is far greater a pain I could ever bear.

My father survived his stroke but what came after was too much for him to tolerate.
His physical body was on auto-pilot and Hannibal was gone.

When we exactly lost him is still a mystery to me and will probably never know how or when Hannibal stopped being Hannibal but I do know one thing for sure... he was ready to go. He was too tired and prayed for a quick and painless slip into sleep.

When he finally did pass away... a weight was lifted and felt peace for the first time in a long time.
His funeral was beautiful... in total, there were approximately over 500 people present, not including the ones that had a second funeral in Mexico. I stopped and realized that there were literally hundreds of people that were touched by my father while he was living. Even when he was on his sick bed, he was an example of perseverance and faithfulness.

We divided my father's ashes in two parts.
One part was sent to Mexico to be buried with my grandmother just as he always wanted and the second part I took and scattered over El Capitan Meadows in Yosemite National Park... one of his favorite places. From the day he first discovered this one spot in particular, he was promised and swore that he would build his future home on that meadow. I guess you can say that his 'heart' was buried in Mexico.. the place of his childhood... and his sense of wonder and adventure at Yosemite. My second baby brother was also there at Yosemite the day we scattered his ashes but this time... it was his turn to ask his loved one to marry him... and Hannibal was there.

My father would be proud of  his family despite the hardships that arose.
In a way... we are tempered glass... how?

You see, when making tempered glass, glass is melted and laid out in large sheets. These must go through an oven like machine that super heats the glass to over 2,000 degrees Fahrenheit! The glass sits in super-heated temperatures for a long time, pushing the limits of strength of the glass. Finally, the glass gets slowly pulled out and takes hours to completely cool. Once the glass has settled and has finished with the tempering process… not even a hammer at full force will shatter that glass.

No... our family grew closer and stronger and dominated over one of the most traumatic and stressful things a family could go through... the loss of a loved one... and that is something that Hannibal would be proud of.

Learn The Signs Of A Stroke

When suffering from a stroke every minute counts. More brain cells are lost every minute a stroke goes untreated because blood flow is being restricted and blocked from the brain. The quicker the victim is able to seek medical assistance the less damage their speech, memory, and movement will suffer. The stroke symptoms typically develop quickly but can become apparent over hours or in rare cases even days.

You must be FAST!



Sometimes other symptoms appear, separately, in combination or with F.A.S.T. signs

Sudden confusion, trouble speaking or understanding speech.

Sudden numbness or weakness of face, arm or leg. Especially on one side of the body.

Sudden trouble seeing in one or both eyes.

Sudden trouble walking, dizziness, loss of balance or coordination.

Sudden severe headache with no known cause.

For more information on how to identify the signs of a stroke, go


How You Can Help

A family member or friend going through the effects of a Stroke are life changing but there are things you can do to make them feel better or help through a hard situation:

1) Keep in touch... the worst thing you can do and assume is that the family wants to be left alone during trying times. Even if it's a simple text message or call... keep in touch!

2) Food... hospital stays can be exhausting and some families can go days without eating

3) Gift cards and small cash donations. Some families stop working and sometimes need a little economic support. Every dollar counts and adds up quickly.

4) Offering transportation to and from the hospital or care facilities.
Other than the cost of gas adding up... families often need to deal with emotional moments that inhibits being able to drive safely to and from home.

5) Care packages... cash donations, shampoo, fresh socks and maybe a toothbrush and toothpaste. Sometimes during long hospitals stays, people tend to forget to tend their basic needs.

6) When visiting a stroke patient, compliance of the family's wishes is a big deal especially if the y ask you to wear a mask, wash your hands or not even touch their loved one. This is not only beneficial to the the well being of the patient and the family but to yourself.

7) Have compassion and be patient.
We tend to loose your patience with the family whose loved one is in the hospital due to added stress and sometimes harsh words from the family or spouse. The last thing the family needs is worrying about gossip or mistreatment from those around them. The family will be on edge and might say or do things yo do not like but remember... what would you do in that was our family member on a hospital bed?
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Father, you were our example of faith! You lived life showing respect, truth, honesty, integrity and passion. Even in you sick bed, you were a positive influence and left in others footprints of hope, encouragement and inspiration. More importantly, you stood up for what you believed in and what is right. You showed everyone that you truly loved God with every fragment of your being. (Luke 10:27)

See you soon Capitán...

#JacquesIsStrong

Our family has hope to see my father once again in the future... when and how?
Visit jw.org for more information and feel free to follow the following link to read a message of hope.




Visit the American Heart Association for more information about Strokes.










Thursday, August 4, 2016

Born at 24... Micro-Preemie Babies














Born at 24... 24 weeks to be exact weighing in at 1 pound and 12 ounces.
He was a Micro-Preemie baby.

A few months ago, an old friend of mine announced that she was pregnant. I personally have never had children but many of my friends have expressed the joy that their children have brought to their life. I could never be happier for my friend...

Exactly 24 weeks into her pregnancy, complications arose.
She gave birth to a beautiful baby boy on December 11th 2015.
Due to his delicate state and small size, he was to remain in NICU for observation.
After a long and hard battle, he passed away exactly 3 months later on March 11th, 2016.

I was heart broken.
My mind and body could not process the sadness that came over me the day I found out the little one passed away. He was a trooper for as long as he could... but he was just too small.
There is nothing I could say to my friend to make her feel better. I know that the only thing that can comfort her is the fact that her baby boy is no longer suffering and is at rest.

Understanding what a micro-preemie baby is has helped to give an old friend the support she very desperately needed and what to say in her time of grievance...

WHAT IS A MICRO-PREEMIE?
A micro preemie is a baby who is born weighing less than 1 pound, 12 ounces (800 grams) or before 26 weeks gestation. Since these types of babies are born months before their due dates, micro preemies face long stays in the neonatal intensive care unit (NICU). Although many extremely premature babies grow up with no long-term effects of prematurity, others face severe health problems throughout life.


A micro baby suffers from a number of immediate health issues including underdeveloped:
1) lungs, heart, veins, and eyes
2) essential body systems such as respiratory, circulatory and digestive


Most babies born prematurely develop permanent damage to their body systems and for the most part require constant medical surveillance.

For more detailed information on the health issues developed by micro-preemie babies, please visit The Very Well website. 


WHAT IS THE SURVIVAL RATE FOR PREMATURE BABIES?


22 weeks - About 10% of babies survive

23 weeks - 50 to 66% of babies survive

24 weeks - 66 to 80% of babies survive

25 weeks - 75 to 85% of babies survive

26 weeks - more than 90% survive


Yes, it is true that micro preemies have far more health challenges and complications than regular preemies, but no preemie is out of the woods, by any stretch.

All preemie parents are scared to death of losing one of the most important things in their lives — no matter how big or small their baby is or how long their baby is in the NICU.

All premature babies are at risk for a variety of setbacks and infections and they all deserve the best medical care available and our respect. There are few things as upsetting as not being able to take your baby home from the hospital after birth, and there is nothing worse than watching your baby suffer through medical interventions in a hospital.

HOW CAN WE HELP PREMATURE BABY PARENTS?

During my friend's 3 month journey with her little one, any small detail to show compassion and support was deeply appreciated. With my friends recent experience, I have learned a great deal and know now of some of the things that her family appreciated. Whether we have children or not, we can do things that will help a family in need...

1) we want to acknowledge the birth of their little ones and congratulate parents on their bundle of joy!

2) Food... hospital stays can be exhausting and some parents can go days without eating

3) Gift cards and small cash donations. Some parents stop working and sometimes need a little economic support. Every dollar counts and adds up quickly.

4) Offering transportation

5) Care packages

6) When visiting a preemie, compliance of parents wishes is a big deal especially if the parents ask you to wear a mask, wash your hands or not even touch the baby.

7) Have compassion and be patient.

The greatest gift you can give a family through those fearful moments is love, prayer and help them maintain a positive attitude and never give up on hope. When a preemie baby loses their battle, the parents need a pillar of strength among friends and families.



This post is dedicated in the memory of baby Isaiah... born at 24.
12/11/2015 - 3/11/2016

Psalm 121:1, 2


Tuesday, June 28, 2016

COPING WITH AN INCURABLE DISEASE














COPING WITH AN INCURABLE DISEASE
Facing a diagnosis of a terminal or chronic illness is something no one wants to think about.  In many ways, this makes sense - who would want to spend time thinking about how they would react if they received a diagnosis of something like terminal cancer... it can leave you feeling overwhelmed, scared, and alone.  But, there are ways to help yourself cope. How?

A few years ago, I was initially diagnosed with a blood disorder called ITP; in many ways it is similar to hemophilia where spontaneous bleeding occurs. After a long battle with painful surgeries, damaging medications and constant feelings of self-loathe and sadness, I felt that my life could not get any worse... shortly there after, I was diagnosed with Systemic Lupus.

Lupus is a monster all on its own.
Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Specifically, I have Circulatory Lupus affecting my blood, veins, heart, lungs, kidneys and liver. In recent years, I have had to submit myself to certain medications and procedures that I never would have thought I would have to take or be a part of. 

After the initial shock, getting such bad news from a doctor often results in a flood of emotions. It’s important to remember that having strong feelings is completely natural and not something anyone should be embarrassed or ashamed about.

COPING WITH YOUR NEW REALITY
There’s both a physical and mental aspect to coping. When dealing with the depression and anxiety that comes with a serious diagnosis, people can often stop taking care of themselves physically. 

1) Daily exercise, even if it’s low impact and only for 30 minutes, is crucial.

2) Maintaining a sense of humor throughout the difficult times. and laughter provide a brief respite from your worries.

 Focusing on today is also helpful for your mental health. Getting caught up in when the end will come or how difficult the illness (or even the treatments, in the case of chemo or radiation) will get in months or years to come is counter-productive.
  
3) Just focus on getting through each individual day as it happens.

If you attempt to do more than that, it will likely leave you overwhelmed and depressed.

4) Spend time with the people you love and continue to do the activities you love. 

5) Talking with others and providing support for other people going through similar diseases can be a great help.

HOW TO HELP A LOVED ONE 
If you have a loved one facing a serious diagnosis, often the best thing you can do is to simply listen.  You shouldn’t expect to deliver some piece of profound advice that will make your loved one feel better. He/she is going to have bad days with irritability, anger, and depression. It’s natural. Let them vent to you and be a sympathetic ear. Sometimes there’s not a whole lot you can say to make them feel better.

Aside from listening, you can help your loved one to feel empowered by assisting them with research about treatment options for their condition and to help them doing things they enjoy doing if they need physical assistance in getting around.

FINDING YOUR OWN WAY
Although family and friends can provide necessary support, the real fight comes down to you and how you will face this new situation in you life. I have personally found that pushing myself gives me what I need to continue day for day. No two people live their lives the same way and no two people deal with adversity or bad news in the same way. In the end, you have to find what works for you.

No matter what comes your way, live a life as a positive influence and leave behind footprints of hope, encouragement and inspiration.




Friday, September 19, 2014

The Keys to a Happy Life





"I'll be happy when I get married and have children..."

"I'll be happy when I get my own home..."

"I'll be happy when I land a new job..."

"I'll be happy when..."



Have you felt like that? And when you attained your goal or acquired the desired item, did your happiness last? Or did it begin to fade? To be sure, reaching a goal or obtaining something we have desired can make us happy, but that kind of happiness can be fleeting. Lasting happiness is not based solely on achievements or acquisitions. Rather, like good physical health, true happiness depends on a variety of factors. Each of us is unique. What makes you happy may not make someone else happy. Additionally, we change as we grow older. Yet, evidence suggests that some things are more consistently associated with happiness. For example, genuine happiness is linked to finding contentment, avoiding envy, cultivating love for others, and building mental and emotional resilience. Let us see why.

1. FIND CONTENTMENT

“Money is a protection,” observed a wise student of human nature. But he also wrote: “A lover of silver will never be satisfied with silver, nor a lover of wealth with income. This too is futility.” (Ecclesiastes 5:10; 7:12) His point? While we may need money to survive, we should avoid greed, for it is insatiable! The writer, King Solomon of ancient Israel, actually experimented to see whether wealth and luxurious living fostered true happiness. “I did not deny myself anything that I desired,” he wrote. “I did not withhold from my heart any sort of pleasure.”—Ecclesiastes 1:13; 2:10.

Having amassed great wealth, Solomon built grand houses, made beautiful parks and pools, and acquired many servants. Whatever he wanted, he got. What did he learn? His experiment made him somewhat happy, but not for long. “I saw that everything was futile,” he observed. “There was nothing of real value.” He even came to hate life! (Ecclesiastes 2:11, 17, 18) Yes, Solomon learned that a life of self-indulgence ultimately leaves one feeling empty and unfulfilled.

Do modern studies agree with that ancient wisdom? An article published in the Journal of Happiness Studies observed that “after one’s basic needs are satisfied, additional income does little to advance one’s subjective well-being.” Indeed, findings show that increased material consumption, especially at the cost of moral and spiritual values, can erode happiness.

BIBLE PRINCIPLE: “Let your way of life be free of the love of money, while you are content with the present things.”—Hebrews 13:5


When people who are resilient make mistakes, they do not berate themselves with self-defeating language, such as “I’m a failure” or “I’m useless.” The Bible says: “A crushed spirit saps one’s strength.” (Proverbs 17:22) The book The Power of Resilience states that if you want to lead a resilient life, “you must recognize that mistakes and failure are a natural occurrence ... Your choice is the manner in which you respond to these events.”

2. AVOID ENVY

Envy is defined as “the painful or resentful awareness of an advantage enjoyed by another, accompanied by a desire to possess the same advantage.” Like a malignant growth, envy can take over one’s life and destroy happiness. 
How might envy take root? How can we recognize this trait? And how can we combat it?

The Encyclopedia of Social Psychology observes that people tend to envy their equals, perhaps in age, experience, or social background. A salesman, for instance, might not envy a famous movie star. But he may envy a more successful fellow salesman.
To illustrate: Certain high officials in ancient Persia envied, not the king, but a brilliant fellow official named Daniel. Indicating how unhappy those men must have been, they even schemed to kill Daniel! But the plot failed. (Daniel 6:1-24) “It is important to recognize the hostile nature of envy,” says the aforementioned encyclopedia. “This hostility explains why envy is associated with so many historical cases of aggression.”

How can you recognize envy? Ask yourself: ‘Do a peer’s successes delight or deflate me? If a sibling, talented classmate, or fellow worker fails in some way, am I sad or gleeful?’ If you answered “deflate me” and “gleeful,” you may be nurturing envy. (Genesis 26:12-14) “Envy,” says the Encyclopedia of Social Psychology, “can poison a person’s capacity to enjoy the good things in life and snuff out feelings of gratitude for life’s many gifts.... Such tendencies are hardly conducive to happiness.”

We combat envy by cultivating genuine humility and modesty, which enables us to appreciate and value the abilities and good qualities of others. “Do nothing out of contentiousness or out of egotism,” the Bible says, “but with humility consider others superior to you.”—Philippians 2:3.

BIBLE PRINCIPLE: “Let us not become egotistical, stirring up competition with one another, envying one another.”—Galatians 5:26.

3. CULTIVATE LOVE FOR PEOPLE

“People’s feelings about their relationships have a bigger impact on their overall satisfaction with their lives than do their job, income, community, or even physical health,” says the book Social Psychology. Simply put, in order to be truly happy, humans need to give and receive love. “If I ... do not have love, I am nothing,” said a Bible writer.—1 Corinthians 13:2.

It is never too late to cultivate love. For example, Vanessa had an abusive, alcoholic father. When she was 14 years old, she ran away from home and stayed in foster homes, as well as in one bad shelter where she remembers begging God for help. Then, perhaps as an answer to her prayers, she was placed with a family who lived by the Bible principle that “love is patient and kind.” (1 Corinthians 13:4) That environment, coupled with what she was learning from her own study of the Bible, helped Vanessa to heal emotionally and progress mentally. “At school, my grades went from D’s and F’s to A’s and B’s,” she said.
Vanessa still bears emotional scars. Nevertheless, she is now a happily married mother of two girls.

BIBLE PRINCIPLE: “Clothe yourselves with love, for it is a perfect bond of union.”—Colossians 3:14

4. BUILD RESILIENCE

Who has a problem-free life? As the Bible says, there is “a time to weep” and “a time to wail.” (Ecclesiastes 3:4) Resilience helps us to get through such times, to bounce back from adversity. Consider Carol and Mildred. Carol has spinal degenerative disease, diabetes, sleep apnea, and macular degeneration that has blinded her left eye. Yet, she says: “I try not to feel discouraged for too long. I allow myself my ‘pity party.’ But then I set my feelings aside and thank God for what I am still able to do, especially for other people.” Mildred too has a number of ailments, including arthritis, breast cancer, and diabetes. But like Carol, she tries not to focus on her problems. “I have learned to love people and to comfort others during their illness, which helps me as well,” she writes. “In fact, I find that when I am comforting others, I am not worrying about myself.”

Although both women are interested in receiving good medical care, they focus, not on their physical health, but on their attitude and how they use their time. As a result, they have an inner joy that no one can take away from them. Additionally, they are much loved by others and are an inspiration to people who are going through various trials.

BIBLE PRINCIPLE: “Happy is the man who keeps on enduring trial, because on becoming approved he will receive the crown of life.”—James 1:12
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When applied, the Bible’s wisdom is “a tree of life to those who take hold of it, and those who keep firm hold of it will be called happy.” (Proverbs 3:13-18) Why not discover that truth for yourself by tapping into the wisdom recorded in the Bible? After all, the Author of this sacred book, who is also called “the happy God,” wants you to be happy too.—1 Timothy 1:11

This information was based on Awake! - November 2014 Issue
Awake! is published monthly by Watchtower Bible and Tract Society of New York, Inc.
For more information, visit www.jw.org  

Saturday, September 28, 2013

"YOU DON'T LOOK SICK..."


If you suffer from a chronic illness, physical condition or pain, you have probably heard some version of the phrase "but you don't look sick" at one time or another. It's frustrating and annoying to say the least. Those of us who live with a chronic health condition often find ourselves being misunderstood by others.

They see us as looking normal and seem to find it hard to believe we are struggling physically. This may be most true at work with our co-workers or employers who do not understand the energy it takes us on a day to day basis to simply maintain 'normal' function. Truthfully, most chronic conditions can appear "invisible" to others until they have reached an end-stage. Thus, living with a chronic health condition may involve years of responses and looks from friends, co-workers and even family members that are anything but understanding. This is draining and stressful in an already taxing situation and takes an emotional toll after a while.

 Trying explain that the difference in being sick and being healthy is having to make choices or to consciously think about things when the rest of the world doesn't have to. The healthy have the luxury of a life without choices, a gift most people take for granted.

Most people start the day with unlimited amount of possibilities, and energy to do whatever they desire, especially young people. For the most part, they do not need to worry about the effects of their actions.

Most people that get sick feel a 'loss' of a life they once knew and most lose the sense of control... taken over by the illness or physical condition.

How to get over the frustration of someone saying "you don't look sick" may at first seem difficult to overcome but not impossible. Mental discipline and true understanding are one of the many things needed to overcome the illness and frustration at those who are not currently suffering a physical condition.

Negative thoughts drain you of energy and keep you from being in the present moment. The more you give in to your negative thoughts, the stronger they become.

A few things that helped me gain a positive outlook in life:

1. SMILE
     - I didn’t do much of this for a long time so I literally had to bring myself in front of a mirror and force myself to smile. It really does help change your mood and relieve stress. I also felt lighter because it takes fewer muscles to smile than to frown.

2. SURROUND YOURSELF WITH POSITIVE PEOPLE
     - I call friends who I know could and will give me constructive, yet loving feedback. When you’re stuck in a negative spiral, talk to people who can put things into perspective and won’t feed your negative thinking

3. CHANGE THE TONE OF YOUR TOUGHTS FROM NEGATIVE TO POSITIVE
     - For example, instead of thinking We are going to have a hard time adjusting to our living situation, replace that with We will face some challenges in our living situation, but we will come up with solutions that we will both be happy with.

4. DON'T PLAY THE VICTIM- YOU CREATE YOUR LIFE (TAKE RESPONSIBILITY)
     - The way I was thinking and acting, you would think I was stuck. Even if our living situation becomes unbearable, there is always a way out. I will always have the choice to make change happen, if need be

5. HELP OTHERS
     - Take the focus away from you and do something nice for another person.
     There is more happiness in giving than there is in receiving.”—Acts 20:35

6. REMEMBER THAT NO ONE IS PERFECT AND MOVE FORWARD
     - It’s easy to dwell on your and others mistakes. The only thing we can do now is learn from those mistakes and move forward.

7. LIST THE THINGS THAT YOU ARE GRATEFUL FOR
     - Being grateful helps appreciate what you already have.

Amongst many other things that help cope with an illness, these have been far effective in my life.

We are all precious, keep looking forward and keeping a positive attitude.

FIGHT ON!